From the Guidelines
For Primary Sclerosing Cholangitis (PSC), the best medical experts are typically found at major liver transplant centers and academic medical institutions with dedicated hepatology departments, such as Mayo Clinic, Cleveland Clinic, UCSF Medical Center, or Mount Sinai Hospital, which have specialized PSC programs and experienced hepatologists who focus on this rare condition. These centers offer comprehensive care including advanced diagnostic imaging, specialized endoscopic procedures like ERCP, and access to clinical trials. When selecting a specialist, look for a hepatologist with specific experience in PSC who works within a multidisciplinary team including transplant surgeons, interventional radiologists, and gastroenterologists.
Key Considerations
- Establishing care at a center with expertise in PSC is crucial for long-term management and potential liver transplantation 1.
- Regular follow-up with specialists is essential for monitoring disease progression, managing complications like bile duct strictures, and implementing appropriate treatments such as ursodeoxycholic acid therapy when indicated 1.
- Connecting with the PSC Partners Seeking a Cure organization can help identify specialists in your region who have experience with this condition.
Multidisciplinary Care
- A multidisciplinary team approach is recommended for the management of PSC, including hepatologists, transplant surgeons, interventional radiologists, and gastroenterologists 1.
- This team should work together to provide comprehensive care, including diagnostic imaging, endoscopic procedures, and access to clinical trials.
Patient Support
- Clinicians should explore and assess quality of life issues in people with PSC as part of routine standard of care 1.
- Information on existing patient support groups should be provided to help patients cope with the condition.
From the Research
Medical Experts for PSC
The best medical experts for Primary Sclerosing Cholangitis (PSC) can be found in various medical institutions and research centers around the world. Some of the key factors to consider when looking for medical experts in PSC include:
- Experience in diagnosing and treating PSC patients
- Knowledge of the latest research and developments in PSC management
- Access to advanced diagnostic and treatment facilities
Specialized Centers
Some of the specialized centers that may have medical experts in PSC include:
- Liver disease clinics
- Gastroenterology departments
- Hepatology research centers
- Transplant centers
Research Institutions
Some of the research institutions that may have medical experts in PSC include:
- Universities with strong gastroenterology and hepatology programs
- Research hospitals with a focus on liver disease
- Institutions with a history of publishing research on PSC 2, 3, 4, 5, 6
Key Considerations
When looking for medical experts in PSC, some key considerations include: