What is the prevalence of adult Wilms tumor (Nephroblastoma)?

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Last updated: May 20, 2025View editorial policy

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From the Research

Adult Wilms tumor is an extremely rare condition, accounting for less than 1% of all adult kidney cancers, with a prevalence that is difficult to determine due to its rarity and potential misdiagnosis as other renal cancers. While Wilms tumor (nephroblastoma) is the most common renal malignancy in children, affecting approximately 1 in 10,000 children, its occurrence in adults over 18 years of age is exceptionally uncommon 1. The exact prevalence is difficult to determine due to its rarity and potential misdiagnosis as other renal cancers. Adult Wilms tumor typically presents between ages 20-40, with no significant gender predilection.

Key Characteristics of Adult Wilms Tumor

  • The rarity of this condition often leads to delayed diagnosis and treatment, as it's not routinely considered in the differential diagnosis of adult renal masses.
  • This contributes to adults generally having a poorer prognosis than children with the same condition.
  • The biological behavior and genetic profile of adult Wilms tumor may differ from pediatric cases, though research is limited due to the small number of cases available for study 2.

Diagnosis and Treatment

  • The preoperative diagnosis of nephroblastoma in adults is difficult because there are no specific radiographic findings that allow to distinguish it from the more common adult renal tumors 2.
  • Histopathologically, there is no difference between adult and childhood Wilms' tumor.
  • Modern treatment regimens improved overall survival (OS) in this group of patients, with OS rates of 90% 2.
  • However, the prognosis remains worse for about 25% of patients with anaplastic, bilateral, and recurrent disease.
  • Due to the fact that nephroblastoma is a very rare type of cancer, adult patients should be treated in an individual way based on the available schemes used in children 2.

Prognosis and Outcome

  • Toxicity in adults is higher than in children 2.
  • The most recent study suggests that adult Wilms tumor has a poor prognosis, with a high risk of recurrence and metastasis, emphasizing the need for early diagnosis and aggressive treatment 1.

References

Research

Adult onset wilms tumor.

Radiology case reports, 2025

Research

Adult Wilms' tumor - diagnosis and current therapy.

Central European journal of urology, 2013

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This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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