Is Paget's disease of bone (Osteitis Deformans) painful?

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From the Research

Paget's disease of bone can be painful, and the pain is typically characterized as deep, aching, and persistent, resulting from increased bone turnover and abnormal bone remodeling. This condition often affects the pelvis, spine, skull, and long bones of the legs, and pain may worsen with weight-bearing activities or at night 1, 2. The pain is a significant aspect of the disease, as it can lead to bone deformities, fractures, and pressure on surrounding nerves and tissues, ultimately affecting the patient's quality of life.

Causes and Complications

The increased bone remodeling in Paget's disease can lead to various complications, including bowing deformity of the long bones, fracture, and nerve compression syndromes 3, 4. Additionally, the disease may cause hearing loss, other neurological complications, heart failure, and, rarely, osteosarcoma 4. The therapeutic approach varies from symptomatic treatment with analgesics and anti-inflammatory drugs to more specific treatments like bisphosphonates 2.

Treatment Options

For those experiencing pain, treatment options include non-steroidal anti-inflammatory drugs (NSAIDs) like ibuprofen (400-800mg three times daily) or naproxen (500mg twice daily) for mild pain [@Example@]. For more severe pain, bisphosphonates such as zoledronic acid (5mg IV once yearly) or alendronate (40mg daily for 6 months) are often prescribed to reduce bone turnover and alleviate pain 1, 2. These medications work by inhibiting the excessive bone resorption characteristic of Paget's disease, thereby reducing inflammation and stabilizing bone structure.

Comprehensive Treatment Approach

Pain management should be part of a comprehensive treatment approach that includes regular monitoring of bone health and addressing any complications that may develop [@Example@]. The most recently available nitrogen-containing bisphosphonate, i.v. zoledronic acid, is the most potent therapy available for the treatment of Paget's disease, and its therapeutic efficacy, long-term effect on biologic activity, and good tolerance support its use as a first-line therapeutic option in patients suffering from Paget's disease 2.

Key Considerations

It is essential to note that the management of patients with Paget's disease should be based on clinical observation and theoretical considerations, as there is no consensus on the threshold values for retreatment, and few studies have evaluated the long-term effects of inhibitors of osteoclastic resorption on the risk of complications 5, 3. However, the progressive nature of the disease, the severity of its complications, and its potential negative impact on quality of life have led many experts to recommend treatment of asymptomatic patients who have active disease at sites where complications are likely to develop 3.

References

Research

Paget disease of bone: therapeutic options.

Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases, 2008

Research

Management of patients with Paget's disease: a consensus document of the Belgian Bone Club.

Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA, 2008

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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