What causes cystic hygroma (cystic lymphangioma)?

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From the Guidelines

Cystic hygroma is primarily caused by lymphatic dysplasia, which is often associated with chromosomal abnormalities such as Turner syndrome (45,X) and Down syndrome (trisomy 21), leading to impaired communication between the lymphatic system and venous drainage. This condition is a type of nonimmune hydrops fetalis (NIHF), which can result from various etiologies, including cardiovascular, chromosomal, hematologic, infectious, and lymphatic abnormalities 1. The development of cystic hygroma is closely linked to the formation of the lymphatic system during fetal development, and genetic factors play a significant role in its pathogenesis.

Key factors that contribute to the development of cystic hygroma include:

  • Chromosomal abnormalities, such as Turner syndrome and Down syndrome, which account for a significant proportion of cases 1
  • Lymphatic dysplasia, which impairs the communication between the lymphatic system and venous drainage 1
  • Impaired venous return, which can result from various mechanisms, including cardiovascular malformations and thoracic abnormalities 1
  • Genetic disorders, such as alpha thalassemia, which can increase the risk of developing NIHF 1

The exact role of environmental factors during pregnancy in the development of cystic hygroma is less understood, but it is believed that they may contribute to the condition in some cases. The blocked lymphatic vessels cause lymph fluid to accumulate in sacs or cysts, which can vary in size and may grow over time. While some cases resolve spontaneously before birth, others require treatment after delivery, which may include surgical removal, sclerotherapy, or drainage procedures depending on the size and location of the cystic hygroma. Diagnostic testing is recommended to identify the underlying cause of NIHF, including chromosomal abnormalities and genetic disorders 1.

From the Research

Causes of Cystic Hygroma

  • Cystic hygroma is a developmental abnormality of the lymphoid system that occurs at sites of lymphatic-venous connection, most commonly in the posterior neck 2.
  • It is frequently associated with karyotypic abnormalities, various malformation syndromes, and several teratogenic agents 2.
  • The disease is the result of a defect in the embryonary development of the lymphatic system 3.
  • Cystic hygroma can occur either as an isolated finding or as a part of a syndrome, with associations to chromosomal abnormalities such as Trisomy 21,13,18, and Turner syndrome, as well as non-chromosomal syndromes like Noonan Syndrome 4.

Associated Factors

  • Increased nuchal translucency and cystic hygroma have been associated with a wide range of structural and genetic abnormalities 4.
  • Approximately 50% of Noonan Syndrome cases are caused by mutations in the PTPN11 gene, which can be associated with cystic hygroma 4.
  • Chromosomal abnormalities were found in five cases of fetuses with cystic hygroma, including Turner's syndrome and Downs' syndrome 5.
  • The presence of septae in cystic hygroma and amniotic fluid alpha-fetoprotein (AFP) levels are prognostic indicators 5.

Developmental Abnormalities

  • Cystic hygroma is a malformation of the lymphatic system that can be diagnosed by ultrasound from the first quarter of pregnancy 5.
  • It is a vascular-lymphatic malformation that can occur in septated or non-septated forms 4.
  • The incidence of cystic hygroma is about 1:1000-1:6000 births 4.

References

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

Research

Cystic hygroma in the fetus and newborn.

Seminars in perinatology, 1999

Research

[Current aspects of cystic lymphangioma in the neck].

Archives de pediatrie : organe officiel de la Societe francaise de pediatrie, 1994

Research

How necessary is to analyze PTPN11 gene in fetuses with first trimester cystic hygroma and normal karyotype?

The journal of maternal-fetal & neonatal medicine : the official journal of the European Association of Perinatal Medicine, the Federation of Asia and Oceania Perinatal Societies, the International Society of Perinatal Obstetricians, 2017

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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