What is the most common site of Zollinger-Ellison syndrome (ZES) gastrinoma?

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Last updated: October 16, 2025View editorial policy

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Most Common Site of Zollinger-Ellison Syndrome (ZES) Gastrinoma

The majority of gastrinomas causing Zollinger-Ellison syndrome are located in the duodenum, with the remainder typically found in the pancreas. 1

Anatomical Distribution of Gastrinomas

  • Gastrinomas are most commonly found within the "gastrinoma triangle," which involves parts of the duodenum, pancreas, and extra-hepatic biliary system 2
  • The duodenum is the predominant site for gastrinomas, followed by the pancreas 1, 2
  • In patients with Multiple Endocrine Neoplasia type 1 (MEN1), gastrinomas are also predominantly found in the duodenum 3

Diagnostic Approach for Gastrinomas

  • Diagnosis begins with measurement of fasting serum gastrin levels (>100 pg/mL is suspicious, >1000 pg/mL with gastric pH <2 is diagnostic) 2
  • Proton pump inhibitors should be discontinued for at least one week and H2 receptor antagonists for 48 hours before testing 2
  • The secretin stimulation test helps differentiate ZES from other causes of hypergastrinemia 2, 4
  • Basal acid output (BAO) measurement is useful in confirming the diagnosis 4

Imaging for Localization

  • Endoscopic ultrasound has high sensitivity (up to 83%) for pancreatic gastrinomas but lower detection rates for duodenal lesions 2
  • Gallium-68 radiotracers with positron emission tomography are currently the standard for tumor localization 2
  • Somatostatin receptor scintigraphy is useful for initial evaluation of suspected gastrinomas 5
  • CT and MRI scans should be multiphase for optimal detection 5

Management Considerations

  • Proton pump inhibitors are the cornerstone of symptomatic treatment 2
  • Surgery is routinely performed in localized sporadic ZES, even with negative imaging results 2, 4
  • For patients with MEN1 and ZES, surgical approach is more controversial, with some advocating surgery only for tumors larger than 2 cm 4
  • All patients with ZES should be evaluated for MEN1 syndrome 1

Clinical Pitfalls to Avoid

  • Failure to discontinue acid-suppressing medications before diagnostic testing can lead to false-negative results 2
  • Missing the diagnosis of MEN1 in ZES patients (occurs in approximately 20% of cases) 6
  • Overlooking duodenal gastrinomas during surgical exploration, which are often small and can be missed without careful examination including duodenotomy 4
  • Assuming gastrinomas are primarily pancreatic when they are more commonly duodenal 1, 2

Understanding the predominant duodenal location of gastrinomas is crucial for proper surgical planning and optimal outcomes in patients with Zollinger-Ellison syndrome.

References

Guideline

Malignant Gastrinomas

Praxis Medical Insights: Practical Summaries of Clinical Guidelines, 2025

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

Research

Zollinger-Ellison syndrome: pathogenesis, diagnosis, and management.

The American journal of gastroenterology, 1997

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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