What is the recommended treatment for patients with 5q- syndrome?

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Last updated: October 24, 2025View editorial policy

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Treatment of 5q- Syndrome

Lenalidomide is the recommended first-line treatment for patients with 5q- syndrome who have transfusion-dependent anemia and have failed or are not candidates for treatment with hematopoietic growth factors. 1

Patient Selection and Treatment Algorithm

  • For patients with isolated del(5q) without additional chromosomal abnormalities or excess blasts, with low or intermediate-1 IPSS score and transfusion-dependent anemia, lenalidomide is the treatment of choice 1
  • Before initiating lenalidomide, patients should be evaluated for:
    • Transfusion dependency status 1
    • Presence of additional chromosomal abnormalities 1
    • Bone marrow blast percentage 1
    • TP53 mutation status (if available) 1

Dosing and Administration

  • The recommended starting dose is 10 mg of lenalidomide daily for 21 days of a 28-day cycle, or 10 mg daily continuously 1
  • Response assessment should be performed after 8-12 weeks (2-4 months) of treatment 1, 2
  • Close monitoring of blood counts is mandatory during treatment, particularly in the first 6-8 weeks, due to the high risk of cytopenias 1, 3

Expected Treatment Outcomes

  • Transfusion independence is achieved in 56-67% of patients 1, 2
  • Cytogenetic responses occur in 50-76% of patients, with complete cytogenetic remission in 38-55% 1, 2
  • Median time to response is approximately 4.6 weeks (range 1-49 weeks) 1, 2
  • Responses are typically durable, with median duration of transfusion independence exceeding 2 years in many patients 2, 3

Management of Side Effects

  • Grade 3-4 neutropenia occurs in 55-75% of patients 1
  • Grade 3-4 thrombocytopenia occurs in 33-44% of patients 1
  • Deep venous thrombosis occurs in 1.4-5.8% of patients 1
  • G-CSF or GM-CSF may be used to prevent or reduce neutropenia 1
  • Dose interruption or reduction may be necessary to manage cytopenias 2, 3

Special Considerations

  • Patients with TP53 mutations have a significantly higher risk of transformation to AML and may be less responsive to lenalidomide 1
  • For these patients, alternative therapeutic options should be considered, including hypomethylating agents or allogeneic hematopoietic stem cell transplantation 4
  • The cumulative risk of AML progression in patients treated with lenalidomide is approximately 16.8% at 2 years and 25.1% at 3 years 1

Treatment After Lenalidomide Failure

  • For patients who fail lenalidomide therapy, options include:
    • Hypomethylating agents 4
    • Immunosuppressive therapy with ATG plus cyclosporine (particularly in younger patients with hypocellular marrow) 1
    • Allogeneic hematopoietic stem cell transplantation for eligible patients 1, 4
    • Enrollment in clinical trials 4

Monitoring During Treatment

  • Complete blood counts should be monitored weekly during the first 8 weeks of treatment and at least monthly thereafter 1, 3
  • Bone marrow examination with cytogenetics should be performed after 3-6 months to assess cytogenetic response 2, 3
  • Regular assessment for signs of disease progression or transformation to AML is essential 5, 4

References

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

Guideline

Prognosis and Management of Low-Risk Myelodysplastic Syndrome with Coronary Artery Disease

Praxis Medical Insights: Practical Summaries of Clinical Guidelines, 2025

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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