What is the initial workup for a patient suspected of having Amyotrophic Lateral Sclerosis (ALS)?

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ALS Initial Workup

The initial workup for suspected ALS requires EMG/nerve conduction studies as the cornerstone diagnostic test, combined with brain MRI to exclude mimics, and a comprehensive laboratory panel to rule out treatable conditions that present similarly. 1, 2, 3

Clinical Evaluation

The diagnosis requires demonstrating both upper motor neuron (UMN) and lower motor neuron (LMN) degeneration with progressive spread of symptoms. 1, 2

Upper motor neuron signs to identify: 2

  • Hypertonicity
  • Hyperreflexia
  • Spasticity

Lower motor neuron signs to identify: 2

  • Muscle fasciculations
  • Weakness (strength ≤4 on any muscle strongly suggests ALS rather than primary lateral sclerosis) 4
  • Atrophy

Key clinical features at presentation: 4

  • Site of onset (limb vs bulbar)
  • Lowest strength score of weakest muscle
  • Presence of dysphagia or dysarthria (occurs in ~80% of bulbar-onset cases) 1

Mandatory Electrophysiological Testing

EMG and nerve conduction velocity (NCV) studies are non-negotiable as they detect lower motor neuron degeneration and distinguish ALS from mimicking conditions. 1, 2, 3, 5 Look for fibrillation potentials, positive sharp waves, fasciculation potentials at rest, incomplete interference patterns, and abnormal motor unit potentials. 5

Neuroimaging

MRI brain without IV contrast is the required initial imaging study to exclude structural lesions, inflammatory conditions, and other ALS mimics. 1, 2, 3

MRI spine without IV contrast may be appropriate when structural, infectious, or neoplastic spinal etiologies need exclusion. 1, 3

Supportive (but not diagnostic) MRI findings include abnormal T2/FLAIR signal in corticospinal tracts (posterior limb of internal capsule, cerebral peduncles) and abnormal hypointensity in precentral gyrus on T2*/susceptibility-weighted imaging. 2, 3

Comprehensive Laboratory Panel

This panel excludes treatable conditions that mimic ALS: 1, 2, 3

Basic metabolic workup:

  • Complete blood count (CBC) 1, 2, 3
  • Comprehensive metabolic panel (glucose, electrolytes, kidney function, liver enzymes) 1, 2, 3

Endocrine and nutritional:

  • Thyroid function tests 1, 2, 3
  • Vitamin B12, folate, and vitamin E levels 1, 2, 3

Immunologic/autoimmune:

  • Serum protein electrophoresis 1, 2, 3
  • Anti-ganglioside antibodies (GM1, GD1a, GD1b) 1, 2, 3
  • Paraneoplastic antibody panel 1, 2, 3
  • Anti-acetylcholine receptor and anti-MuSK antibodies 1, 2, 3

Cerebrospinal Fluid Analysis

CSF examination should include: cell count, protein, glucose, IgG index, oligoclonal bands, and cytology to exclude infectious, inflammatory, or neoplastic causes. 1, 2, 3

Critical caveat: Marked pleocytosis (>50 cells/μL) argues strongly against ALS and should prompt reconsideration of the diagnosis. 2, 3

Genetic Testing

Consider genetic testing for ALS-associated genes (C9orf72, SOD1, FUS, TARDBP), particularly when family history is present. 1, 3 Approximately 10% of ALS cases are familial. 6

Dysphagia Screening

Screen for dysphagia at diagnosis even in patients without bulbar symptoms, as early swallowing alterations occur frequently. 7, 1, 2

Recommended screening tools: 1, 2

  • Structured questionnaires (EAT-10): 86% sensitivity, 76% specificity
  • Volume-Viscosity Swallow Test (V-VST): 92% sensitivity, 80% specificity
  • Videofluoroscopy at diagnosis to detect early dysphagia and silent aspirations

Establish 3-month follow-up intervals for dysphagia monitoring as part of comprehensive neurological evaluation. 7, 1, 2

Common Diagnostic Pitfalls

Average diagnostic delay is 10-16 months due to ALS heterogeneity and the need to exclude mimicking conditions. 6 The absence of a definitive biomarker makes clinical and electrophysiological assessment paramount. 5, 6

Weight loss occurs disproportionately even when controlled for dysphagia and muscle atrophy, making it a useful clinical marker. 4

Patients presenting with only UMN signs require serial monitoring of strength, weight, forced vital capacity, and repeat EMG, as changes signal imminent LMN involvement. 4

References

Guideline

Diagnostic and Treatment Approaches for Amyotrophic Lateral Sclerosis (ALS)

Praxis Medical Insights: Practical Summaries of Clinical Guidelines, 2025

Guideline

Investigation for Amyotrophic Lateral Sclerosis (ALS)

Praxis Medical Insights: Practical Summaries of Clinical Guidelines, 2025

Guideline

Diagnostic Testing for Suspected Amyotrophic Lateral Sclerosis (ALS)

Praxis Medical Insights: Practical Summaries of Clinical Guidelines, 2025

Research

Clinical neurophysiology in ALS.

Archives italiennes de biologie, 2011

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

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Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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