What is the diagnostic workup and treatment for a patient with a tracheal mass resembling lymph nodes with Castleman disease features?

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Diagnostic Workup and Treatment of Tracheal Mass with Castleman Disease Features

Initial Diagnostic Approach

For a tracheal mass resembling lymph nodes with Castleman disease features, tissue diagnosis via biopsy is mandatory, with the specific approach determined by the mass location and accessibility. 1

Biopsy Strategy

  • Bronchoscopy with transbronchial needle aspiration (TBNA) or endobronchial ultrasound-guided needle aspiration (EBUS-NA) is the preferred initial approach for accessible tracheal masses, with EBUS-NA demonstrating a diagnostic yield of 93% and specificity of 100% for mediastinal and airway lesions 1

  • Use 19-gauge needles to obtain adequate tissue for both histologic evaluation and immunophenotyping, as larger needles provide better tissue samples essential for definitive diagnosis 1

  • Rapid on-site cytopathologic evaluation should be performed during the procedure to ensure specimen adequacy and reduce the need for repeat procedures 1

  • If TBNA/EBUS-NA is non-diagnostic or yields insufficient tissue, proceed directly to surgical excisional biopsy rather than repeating needle techniques, as Castleman disease requires adequate tissue architecture for diagnosis 1, 2

Essential Pathologic Evaluation

  • The pathology specimen must include immunohistochemistry for CD20, CD30, CD15, and HHV-8 to differentiate Castleman disease from lymphoma and determine disease subtype 3, 4

  • Request evaluation for characteristic "onion skin" and "lollipop" appearances that are pathognomonic for hyaline-vascular type Castleman disease 4

  • Ensure testing for HHV-8 is performed, as HHV-8-negative status supports unicentric Castleman disease rather than multicentric disease 4

Comprehensive Staging Workup

Imaging Studies

  • Obtain contrast-enhanced CT of chest, abdomen, and pelvis to identify additional lymphadenopathy and distinguish unicentric from multicentric disease 1, 4

  • PET/CT from skull base to mid-thigh is recommended to detect occult disease sites and assess metabolic activity, though Castleman disease may show variable FDG uptake 3, 5

  • Chest MRI with and without contrast may be obtained if CT findings are equivocal or to better characterize the relationship of the mass to adjacent vascular structures 1

Laboratory Evaluation

  • Complete blood count, comprehensive metabolic panel including LDH, and inflammatory markers (CRP, ESR) should be obtained 1

  • HIV testing and hepatitis B/C screening are mandatory, as multicentric Castleman disease is associated with HIV and HHV-8 infection 1, 4

  • Serum IL-6 levels should be measured if systemic symptoms are present, as elevated IL-6 suggests multicentric disease 1

Exclusion of Alternative Diagnoses

  • Rule out lymphoma (particularly Hodgkin lymphoma and large B-cell lymphoma) through immunophenotyping, as mediastinal/tracheal lymphadenopathy with CD20 positivity can represent either entity 1, 3

  • Exclude thymic tumors if the mass is in the anterior mediastinum/upper trachea by assessing for typical thymic tumor markers and location 1

  • Consider infectious etiologies (tuberculosis, fungal infections) in the differential, particularly if the patient has risk factors or atypical presentation 1

Treatment Algorithm

Unicentric Castleman Disease (Localized Tracheal Mass)

  • Complete surgical excision is the definitive treatment of choice for unicentric Castleman disease, offering excellent outcomes with potential cure 4, 6, 7, 2

  • For endotracheal lesions causing airway obstruction, laser resection or rigid bronchoscopy with tumor debulking may be required as initial management to secure the airway before definitive surgical resection 2

  • Video-assisted thoracoscopic surgery (VATS) or open surgical approach should be selected based on mass size, location, and relationship to critical structures 5

  • No adjuvant therapy is required after complete resection of unicentric disease, as surgical excision alone is curative 4, 7

Multicentric Castleman Disease (If Multiple Sites Identified)

  • Systemic chemotherapy is required for multicentric disease, though specific regimens are beyond the scope of isolated tracheal masses 4

  • Rituximab-based therapy is the standard approach for HHV-8-associated multicentric Castleman disease 4

Critical Pitfalls to Avoid

  • Do not rely on fine needle aspiration alone for diagnosis, as the architectural features essential for diagnosing Castleman disease require core biopsy or excisional biopsy 1

  • Do not assume benign disease based on imaging characteristics alone, as intrapulmonary and tracheal Castleman disease can mimic malignancy on CT and PET imaging 6, 5, 7

  • Do not proceed with definitive surgery without tissue diagnosis unless the mass is causing critical airway compromise requiring emergent intervention 2

  • Ensure adequate long-term follow-up after resection, as there is a small risk of malignant transformation to lymphoma, though this is rare with unicentric disease 4

Post-Treatment Surveillance

  • Clinical examination and chest imaging at 3-6 month intervals for the first 2 years, then annually thereafter to monitor for recurrence 4

  • No routine systemic therapy or radiation is indicated for completely resected unicentric disease 4, 7

References

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

Guideline

Hodgkin's Lymphoma Diagnosis and Management

Praxis Medical Insights: Practical Summaries of Clinical Guidelines, 2025

Research

Castleman's disease - a diagnostic dilemma.

Journal of cardiothoracic surgery, 2014

Research

Isolated intrapulmonary Castleman's disease: a case report, review of the literature.

Annals of thoracic and cardiovascular surgery : official journal of the Association of Thoracic and Cardiovascular Surgeons of Asia, 2014

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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