What percentage of people with Deep Vein Thrombosis (DVT) have Factor V Leiden?

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Factor V Leiden Prevalence in DVT Patients

Factor V Leiden is present in approximately 15-20% of patients with an initial episode of deep vein thrombosis, making it the most common known heritable thrombophilic risk factor. 1, 2

Prevalence Data

The prevalence of Factor V Leiden in DVT patients varies based on clinical presentation and population characteristics:

  • Overall DVT population: 15-20% of individuals with an initial VTE episode carry Factor V Leiden 1, 2
  • Selected high-risk populations: Up to 40% prevalence in patients under 50 years old and/or those with recurrent thrombosis 2
  • Elderly patients with idiopathic DVT: 26% of men over age 60 with first episode of idiopathic VTE had Factor V Leiden 1
  • Large vessel DVT: Higher prevalence (37.7%) in patients with iliofemoral or femoral DVT compared to calf DVT (13.3%) 3

Clinical Context and Comparison

The prevalence in DVT patients is substantially higher than in the general population:

  • General Caucasian population: Approximately 5% carry Factor V Leiden in heterozygous form 2
  • Non-Hispanic whites: 5.1% heterozygous prevalence 1
  • Hispanic whites: 2.0% heterozygous prevalence 1
  • African Americans: 1.2% heterozygous prevalence 1

Important Caveats

The prevalence differs by clinical presentation: Factor V Leiden is found more commonly in patients presenting with isolated deep vein thrombosis (17%) compared to those presenting with pulmonary embolism alone (9%) 4. This suggests Factor V Leiden may preferentially lead to manifest DVT rather than PE 4.

Geographic and ethnic variation exists: In Asian-Indian populations, Factor V Leiden contributes far less to activated protein C resistance in DVT patients than observed in Caucasians, with only 16 of 31 patients with activated protein C resistance carrying the mutation 5.

Age considerations: The American College of Medical Genetics notes that among Factor V Leiden carriers, the first lifetime episode of VTE usually occurs after age 50 years, indicating the mutation remains clinically relevant across all age groups 1.

References

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

Guideline

Factor V Leiden and Deep Vein Thrombosis

Praxis Medical Insights: Practical Summaries of Clinical Guidelines, 2025

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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