What is the diagnostic workup for pheochromocytoma (adrenal gland tumor)?

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From the Guidelines

The workup of pheochromocytoma begins with biochemical testing to confirm the diagnosis, typically measuring plasma free metanephrines or 24-hour urinary fractionated metanephrines and catecholamines, as recommended by the most recent guidelines 1.

Key Steps in the Workup of Pheochromocytoma

  • Biochemical testing is the first step, focusing on plasma free metanephrines or 24-hour urinary fractionated metanephrines and catecholamines, due to their high sensitivity for detecting catecholamine-secreting tumors 1.
  • If biochemical testing is positive, imaging studies should be performed to localize the tumor, with CT scan with contrast of the abdomen and pelvis being the first-line imaging modality, and MRI as an alternative 1.
  • For patients with confirmed biochemical evidence but negative conventional imaging, functional studies such as 123I-MIBG scintigraphy or 18F-FDG PET/CT may be necessary 1.
  • Genetic testing should be considered for all patients with pheochromocytoma, as up to 40% have an underlying germline mutation in susceptibility genes like RET, VHL, NF1, or SDHx 1.

Preoperative Preparation

  • Prior to surgical resection, which is the definitive treatment, patients require preoperative alpha-adrenergic blockade with phenoxybenzamine (starting at 10 mg twice daily and titrating up) or doxazosin (starting at 2 mg daily) for 1-2 weeks, followed by beta-blockade (such as propranolol 20-40 mg three times daily) only after adequate alpha-blockade 1.
  • Liberal salt and fluid intake should be encouraged during preoperative preparation to prevent orthostatic hypotension 1.

Importance of Comprehensive Workup

  • The comprehensive approach to pheochromocytoma workup is essential because these tumors can cause life-threatening cardiovascular complications if not properly diagnosed and managed 1.
  • A multidisciplinary review by endocrinologists, surgeons, and radiologists is recommended when the imaging is not consistent with a benign lesion, there is evidence of hormone hypersecretion, the tumor has grown significantly during follow-up imaging, or adrenal surgery is being considered 1.

From the Research

Diagnostic Approach

The workup of pheochromocytoma involves a combination of biochemical tests, imaging studies, and genetic screening. The following steps are recommended:

  • Initial biochemical testing should include measurements of plasma free or urinary fractionated metanephrines 2, 3, 4, 5
  • Consideration should be given to preanalytical factors leading to false-positive or false-negative results 5
  • Computed tomography (CT) or magnetic resonance imaging (MRI) should be used for initial imaging, with CT suggested for initial imaging and MRI as a better option in patients with metastatic disease or when radiation exposure must be limited 2, 5
  • Functional imaging modalities such as metaiodobenzylguanidine (MIBG) scintigraphy, positron emission tomography (PET), or single photon emission computed tomography (SPECT) can be used to assess the functionality of the tumor 2, 5

Biochemical Testing

Biochemical testing is crucial for the diagnosis of pheochromocytoma. The following tests are recommended:

  • Plasma free metanephrines: highly sensitive and specific for diagnosing pheochromocytoma 3, 4, 5
  • Urinary fractionated metanephrines: highly sensitive and specific for diagnosing pheochromocytoma 3, 4, 5
  • Clonidine test: can be used to confirm the diagnosis if the results of plasma or urinary metanephrines are equivocal 4

Imaging Studies

Imaging studies are essential for the localization of pheochromocytoma. The following imaging modalities are recommended:

  • CT: high sensitivity for detecting pheochromocytoma, but lacks specificity 2, 5
  • MRI: high sensitivity for detecting pheochromocytoma, and better than CT in patients with metastatic disease or when radiation exposure must be limited 2, 5
  • PET/CT/MR: offers high sensitivity and specificity for detecting pheochromocytoma and paraganglioma 6

Genetic Screening

Genetic screening is recommended for all patients with pheochromocytoma, as gene mutations are reported in 32-79% of cases 2, 5. The following genetic tests are recommended:

  • SDHx mutations: should be tested in patients with paraganglioma 5
  • SDHB mutations: should be tested in patients with metastatic disease 5

References

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

Research

Pheochromocytoma and paraganglioma: an endocrine society clinical practice guideline.

The Journal of clinical endocrinology and metabolism, 2014

Research

Pheochromocytoma: An approach to diagnosis.

Best practice & research. Clinical endocrinology & metabolism, 2020

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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