What is interstitial cystitis (IC)?

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From the Guidelines

Interstitial cystitis (IC) is a heterogeneous clinical syndrome characterized by bladder/pelvic pain and pressure/discomfort associated with urinary frequency and strong urge to urinate.

Key Symptoms

  • Pain (including sensations of pressure and discomfort) is the hallmark symptom of IC/BPS, which can be described as suprapubic pain or pressure related to bladder filling, as well as pain throughout the pelvis and in extragenital locations 1
  • Urinary urgency and frequency are also common symptoms, but are not exclusive to IC/BPS and can be found in other lower urinary tract disorders 1

Definition

The American Urological Association (AUA) defines IC/BPS as "an unpleasant sensation (pain, pressure, discomfort) perceived to be related to the urinary bladder, associated with lower urinary tract symptoms of more than six weeks duration, in the absence of infection or other identifiable causes" 1

Pathophysiology

The exact cause of IC/BPS is unknown, but it is thought to be a bladder pain disorder that may be associated with voiding symptomatology and other systemic chronic pain disorders, and may be part of a more generalized systemic disorder 1

From the Research

Definition and Symptoms of Interstitial Cystitis (IC)

  • Interstitial cystitis (IC) is a heterogeneous chronic disease of unknown etiology that impacts a large number of women, characterized by pelvic pain exacerbated by bladder filling, and associated with lower urinary tract symptoms such as frequency and urgency 2.
  • IC is also known as bladder pain syndrome (IC/BPS), a chronic pelvic pain syndrome related to the urinary bladder 3.
  • The symptoms of IC are highly variable and can range from moderate discomfort to severe, debilitating pain, accompanied by nocturia, diurnal urinary frequency, and urgency 4.

Pathophysiology and Etiology

  • The pathophysiology of IC is incompletely understood, but theories include the breakdown of the glycosaminoglycan (GAG) layer, altered permeability of the urothelium, uroinflammation, and neural up-regulation 5.
  • Mast cell activation, altered bladder epithelial permeability, and sensory afferent nerve up-regulation are also thought to play key roles in the development of IC 6.
  • The etiology of IC is unknown, but recent theories include the role of an antiproliferative factor 6.

Diagnosis and Treatment

  • The diagnosis of IC is often delayed due to a low index of suspicion, and is made from the combination of symptoms, cystoscopic findings, and bladder biopsies 6.
  • Treatment options for IC are varied and include behavioral changes, oral medications, intravesical instillation of drugs, and more invasive techniques 3.
  • Current guidelines recommend a personalized and progressive approach to treatment, starting with conservative options and advancing to more invasive treatments as needed 2, 3.

References

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

Research

Current guidelines in the management of interstitial cystitis.

Translational andrology and urology, 2015

Research

An update on treatment options for interstitial cystitis.

Przeglad menopauzalny = Menopause review, 2020

Research

Interstitial cystitis: a guide to recognition, evaluation, and management for nurse practitioners.

Journal of wound, ostomy, and continence nursing : official publication of The Wound, Ostomy and Continence Nurses Society, 2002

Research

Interstitial Cystitis: An Update on the Disease Process and Treatment.

Journal of pain & palliative care pharmacotherapy, 2018

Research

Interstitial cystitis.

Journal of obstetrics and gynaecology : the journal of the Institute of Obstetrics and Gynaecology, 2004

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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