Can numbness, tingling, or weakness in extremities be seen in patients with Optic Neuritis (ON), Multiple Sclerosis (MS)-associated Optic Neuritis, Neuromyelitis Optica Spectrum Disorder (NMOSD), Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOGAD), or Systemic Lupus Erythematosus (SLE)?

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Numbness, Tingling, or Weakness in Extremities Across Optic Neuritis Conditions

Yes, numbness, tingling, or weakness in extremities can occur in MS-associated optic neuritis, NMOSD, and SLE, but is not a feature of isolated optic neuritis or MOGAD-associated optic neuritis alone.

MS-Associated Optic Neuritis

  • Extremity symptoms are common when optic neuritis occurs with concurrent myelopathy in MS, presenting as numbness, tingling, or weakness due to spinal cord demyelinating lesions 1.
  • Patients with MS-associated optic neuritis may develop transverse myelitis with altered sensation, pain, muscle weakness, or atrophy as part of their demyelinating disease 2.
  • The combination of optic neuritis with myelopathy requires immediate high-dose IV methylprednisolone 1000 mg/day for 3 days, as concurrent spinal cord involvement produces these extremity symptoms 1.
  • Extensive spinal cord lesions (>3 segments) with reduced muscle strength or sphincter dysfunction may require plasma exchange if steroids fail 1.

NMOSD (Neuromyelitis Optica Spectrum Disorder)

  • NMOSD characteristically presents with longitudinally extensive transverse myelitis (LETM) causing bilateral lower limb weakness, numbness, and urinary retention 3, 4.
  • The typical initial manifestations in adult NMOSD patients are optic neuritis and myelitis, with myelitis producing prominent extremity symptoms 5.
  • NMOSD patients commonly present with acute urinary retention, bilateral lower limb weakness, and sensory disturbances due to spinal cord involvement extending multiple segments 3.
  • LETM in NMOSD extends over >3 vertebral segments and produces severe motor and sensory deficits in the extremities 2, 4.

SLE (Systemic Lupus Erythematosus)

  • SLE can cause peripheral neuropathy (2-3%) presenting with altered sensation, pain, muscle weakness, or atrophy in extremities 2.
  • SLE-related peripheral nervous system disorders include polyneuropathy, mononeuropathy (single or multiplex), and acute inflammatory demyelinating polyradiculoneuropathy 2.
  • When SLE causes transverse myelitis concurrent with optic neuritis, patients develop extremity weakness and sensory changes 2.
  • Co-existing transverse myelitis with optic neuritis in SLE suggests an underlying inflammatory basis requiring pulse IV methylprednisolone combined with IV cyclophosphamide 2.

MOGAD (MOG Antibody-Associated Disease)

  • MOGAD-associated optic neuritis alone does not typically cause extremity symptoms, as the disease primarily affects the optic nerves 2, 5.
  • However, MOGAD can present with myelitis in addition to optic neuritis, which would then produce extremity symptoms 5.
  • Short spinal cord lesions occur in approximately 44-52% of MOG-EM patients over the disease course, though LETM is also common 2.

Isolated Optic Neuritis

  • Isolated optic neuritis without concurrent CNS involvement does not cause numbness, tingling, or weakness in extremities 6.
  • The optic nerve inflammation occurs along the nerve itself and produces only visual symptoms, periocular pain, and photophobia 6.

Critical Diagnostic Considerations

  • When extremity symptoms accompany optic neuritis, immediately obtain MRI of brain and complete spine with contrast to identify myelitis 1, 3.
  • Test for AQP4-IgG and MOG-IgG antibodies when LETM (>3 segments) is present with optic neuritis, as this dramatically changes treatment approach 1, 5.
  • Nerve conduction studies and electromyography can identify peripheral neuropathy patterns in SLE patients with extremity symptoms 2.
  • The presence of extremity symptoms with optic neuritis indicates multifocal CNS involvement requiring more aggressive immunosuppression than isolated optic neuritis 2, 1.

References

Guideline

Treatment of Acute Optic Neuritis with Myelopathy in Multiple Sclerosis

Praxis Medical Insights: Practical Summaries of Clinical Guidelines, 2026

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

Research

CNS inflammatory demyelinating disorders: MS, NMOSD and MOG antibody associated disease.

Journal of investigative medicine : the official publication of the American Federation for Clinical Research, 2020

Guideline

Optic Neuritis Diagnosis and Clinical Features

Praxis Medical Insights: Practical Summaries of Clinical Guidelines, 2026

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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