Comprehensive Assessment and Plan for Elderly Frail Woman on Hospice with ADL Dependence
Assessment
Functional Status and Frailty
This patient requires comprehensive documentation of her frailty status using a validated multidimensional frailty instrument, with specific assessment of each activity of daily living (ADL) and instrumental activity of daily living (IADL) impairment. 1
- Document specific ADL limitations: Record whether she requires "some help," "unable to perform," or can perform independently for bathing, dressing, toileting, transferring, continence, feeding, and grooming 2, 1
- Document IADL limitations: Assess using transportation, managing money, taking medications, shopping, preparing meals, doing laundry, doing housework, and using telephone 2, 1
- Frailty assessment: Use validated tools such as Clinical Frailty Scale or FRAIL Scale to quantify her frailty level 1, 3
- Gait and mobility: Assess 4-meter gait speed (≥4 seconds indicates impairment) and document fall history in the last 6 months 1
Hospice Status Documentation
The patient is enrolled in Medicare hospice with routine home care (G9709) and skilled nursing facility care (G9710), indicating terminal prognosis with life expectancy of 6 months or less. 1
- Homebound status: Document that she is confined to home except for medical purposes, which is mandatory for Medicare coverage 2, 4
- Terminal diagnosis: Record the primary hospice diagnosis and estimated prognosis 1
- Hospice level of care: Clarify whether she is receiving routine home care, continuous home care, or general inpatient care 1
Cancer Screening Status
This patient has appropriately aged out of both breast and colon cancer screening given her hospice enrollment and limited life expectancy. 1
- Breast cancer screening (G9709): Document that screening mammography is not indicated due to hospice status and estimated life expectancy of less than 10 years required to benefit from screening 1
- Colon cancer screening (G9710): Document that colonoscopy or other colon cancer screening is not indicated due to hospice enrollment and limited life expectancy 1
- Rationale: In patients with multimorbidity and limited life expectancy, preventive services with long time-to-benefit should be discontinued to focus on quality of life and symptom management 1
Nutritional Assessment
Assess for malnutrition risk, which is substantially elevated in frail elderly patients and directly impacts quality of life. 1
- Weight history: Document weight loss in past 3 months (>3 kg indicates high risk) 1
- Dietary intake: Assess whether she consumes adequate calories (minimum 1500 kcal/day) and protein requirements 1
- Hydration status: Ensure daily fluid intake of 1.6 L for women, as individuals with cognitive decline often forget to drink 1
- Swallowing assessment: Screen for dysphagia using Eating Assessment Tool-10 (positive if score ≥3) 1
- Sarcopenia screening: Assess for disproportionate loss of muscle mass and strength following European Working Group on Sarcopenia in Older People 2 guidelines 1
Medication Review
Conduct comprehensive medication review to discontinue medications with limited benefit that do not improve quality of life or relieve symptoms in the hospice setting. 5, 1
- Identify limited benefit medications (LBMs): Review for anti-hyperlipidemics (statins), anti-hypertensives (if not for symptom control), oral anti-diabetics, anti-platelets, anti-dementia medications, anti-osteoporotic medications, and proton pump inhibitors 5
- Discontinuation rationale: 29.8-30.5% of hospice patients inappropriately continue LBMs after hospice admission; these should be stopped unless directly addressing symptoms 5
- Medication management support: Designate a family member to fill weekly pillboxes and provide written instructions for remaining medications 1
Home Environment and Safety
Document home safety evaluation findings and environmental barriers that impact her care needs. 2, 1
- Fall risk assessment: Ask "Do you have trouble with stairs inside or outside of your home?" and assess for hazards with bathtubs, rugs, or lighting 1, 2
- Environmental modifications needed: Document need for handrails, adequate lighting, removal of loose rugs, and adaptive equipment 2, 4
- Assistive devices: If mobility impairment present, prescribe walker with specific type (standard, two-wheeled, or four-wheeled) based on functional limitations 4
Social Support and Caregiver Assessment
Identify and document all available caregivers and assess their capacity to meet her care needs. 2, 1
- Primary caregivers: List identified persons in the medical record who can help in case of illness or emergency 1, 2
- Caregiver capacity: Document whether caregivers demonstrate anxiety, confusion, forgetfulness, or poor coping skills 2
- Living situation: Record whether she lives alone or has inadequate support systems 2, 1
- Decision-making: Document who is involved in medical decision-making and establish documented health care proxy 1
Psychological and Spiritual Assessment
Address psychological, social, cultural, and spiritual needs as core components of end-of-life care. 1
- Emotional health screening: Use PROMIS Anxiety 4-item scale (raw score ≥11 indicates need for intervention) 1
- Depression screening: Assess for history of major depression and current mood symptoms 1
- Spiritual needs: Offer access to clergy or spiritual support to foster communication with congregation of worship 1
Plan
Hospice Services Coordination
Ensure comprehensive interdisciplinary hospice team involvement to address all dimensions of end-of-life care. 1
- Skilled nursing: Registered nurse with end-of-life expertise visits as needed with 24-hour on-call availability 1
- Medical social services: Social worker provides counseling, bereavement support, and care coordination 1
- Home health aide services: Personal care assistance with ADLs (bathing, dressing, toileting) is covered only when concurrent skilled nursing or therapy services are justified 2, 1
- Therapy services: Physical therapy for gait/assistive device evaluation, strength, and balance training; occupational therapy for home safety evaluation and functional impairment treatment 1, 2
- Hospice medical director: Provides consultation and oversight of care plan 1
- Volunteer services: Trained hospice volunteers offer friendly visits, compassionate listening, and companionship 1
Medication Management Plan
Optimize medication regimen by discontinuing non-palliative medications and focusing on symptom relief and quality of life. 5, 1
- Discontinue limited benefit medications: Stop statins, anti-osteoporotic medications (if taking >5 years, fracture protection persists up to 5 additional years), and other medications not addressing symptoms 1, 5
- Continue symptom-directed medications: Maintain medications that directly relieve pain, dyspnea, nausea, anxiety, or other distressing symptoms 1
- Simplify regimen: Consolidate dosing schedules to once daily when possible to improve adherence 1
- Family medication management: Designate responsible family member to fill weekly pillboxes and store medications (except as-needed medications) in family member's home 1
- Written instructions: Provide detailed written medication list with indications and monitoring instructions 1
Nutritional Support Plan
Implement individualized nutritional interventions to maintain quality of life without imposing dietary restrictions. 1
- Liberalize diet: Avoid dietary restrictions; weight-reducing diets are contraindicated in frail elderly hospice patients 1
- Protein and calorie supplementation: Recommend nutritional supplements to meet protein-calorie requirements; for intake <1500 kcal/day, add daily multivitamin supplementation 1
- Small frequent meals: Provide high-protein/high-calorie snacks throughout the day 1
- Hydration monitoring: Ensure 1.6 L daily fluid intake with consistent monitoring to prevent dehydration 1
- Dietitian referral: Consult dietitian to tailor recommendations to her specific needs and preferences 1
- Vitamin supplementation: Consider vitamin D, B12, and folate supplementation if deficiencies identified 1
Functional Support and Rehabilitation
Provide targeted interventions to maximize functional independence and prevent complications. 1, 2
- Physical therapy: Request gait/assistive device evaluation, lower-extremity strength training, and balance training for fall prevention 1, 2
- Occupational therapy: Request home safety evaluation and treatment for functional impairments affecting ADLs and IADLs 1, 2
- Fall prevention: Check orthostatic blood pressure, adjust medications if low or low-normal, and provide falls prevention education 1
- Adaptive equipment: Provide walker, raised toilet seat, shower chair, and other assistive devices as needed 4
Symptom Management and Palliative Care
Prioritize alleviation of pain and other physical symptoms using palliative care paradigm. 1
- Pain assessment: Regular pain screening with appropriate analgesic management including opioids as needed 1
- Dyspnea management: Address respiratory symptoms with oxygen, opioids, and positioning 1
- Skin integrity: Implement pressure ulcer prevention strategies given her frailty and limited mobility 6
- Bowel and bladder management: Prevent constipation from opioids; minimize urinary catheter use to reduce infection risk 1
Communication and Decision-Making
Respect patient dignity and family wishes while maintaining clear communication about goals of care. 1
- Shared decision-making: Ensure patient and family understand hospice philosophy and make informed choices consistent with patient preferences 1
- Communication modality: If communicative impairments develop, identify and maintain assistive devices to allow continued communication with family and caregivers 1
- Advance care planning: Confirm documented health care proxy and POLST/MOLST forms are in medical record 2
- Family education: Provide education about disease progression, what to expect, and how to contact hospice team 24/7 1
Caregiver Support
Provide comprehensive support to family caregivers to prevent burnout and ensure sustainable care. 1
- Respite care: Arrange periodic respite admissions to skilled nursing facility to provide caregiver relief 1
- Caregiver education: Train family in proper positioning, range of motion exercises, and use of assistive devices 2
- Counseling services: Offer adjustment-to-death support and bereavement counseling (available up to 1 year after death) 1
- Social work support: Address financial concerns, community resources, and psychosocial needs 1
Cancer Screening Documentation
Document rationale for discontinuation of cancer screening given hospice status. 1
- Breast cancer screening (G9709): Document that patient has aged out of screening due to hospice enrollment and limited life expectancy insufficient to benefit from screening (requires >10 years) 1
- Colon cancer screening (G9710): Document that patient has aged out of screening due to hospice enrollment and focus on quality of life rather than preventive services with long time-to-benefit 1
- Shared decision-making: Confirm patient and family understand and agree with discontinuation of screening 1
Monitoring and Follow-Up
Establish regular monitoring schedule with hospice team to assess symptom control and adjust care plan. 1
- Nursing visits: Schedule frequency based on symptom burden and caregiver needs (typically 1-3 times weekly for routine home care) 1
- Physician oversight: Hospice medical director reviews care plan regularly with attending physician 1
- Crisis management: Ensure family knows how to access 24-hour hospice nurse for urgent symptom management 1
- Level of care adjustments: Reassess need for continuous home care or general inpatient care if symptoms become uncontrolled 1
Documentation for Medicare Coverage
Ensure all documentation meets Medicare requirements for home health and hospice services. 2, 4
- Homebound status: Explicitly document that patient is confined to home except for medical purposes 2, 4
- Skilled service justification: Document specific skilled nursing or therapy needs that justify home health aide coverage for ADL assistance 2, 1
- Functional limitations: Record exact level of assistance required (standby, minimal, moderate, maximal, total) for each ADL 2
- Medical necessity: Document unstable medical status, multiple comorbidities, or high risk of complications requiring close supervision 2, 1