Assessing Decision-Making Capacity in an 87-Year-Old with Alzheimer's Disease
Presume this resident has capacity until a formal, decision-specific assessment demonstrates otherwise—the Alzheimer's diagnosis alone does not establish incapacity. 1, 2
Core Assessment Framework
Evaluate four distinct abilities using a structured approach, as recommended by the American College of Physicians and American Academy of Periodontology: 1, 2
1. Understanding
- Ask the resident to explain in their own words their medical condition, the proposed decision, available alternatives, and the risks/benefits of each option. 1
- Use open-ended questions rather than yes/no queries to assess genuine comprehension. 3
- Document specific examples of what the resident does or does not understand. 2
2. Appreciation
- Determine whether the resident acknowledges their medical conditions (Alzheimer's, depression, cardiac disease, etc.) and recognizes how the decision applies to their personal situation. 1
- Ask: "What do you believe will happen to you if you choose this option?" 1
3. Reasoning
- Assess the resident's ability to weigh risks against benefits and reach a conclusion consistent with that analysis. 1
- The reasoning process matters more than whether you agree with the final choice—an "unwise" decision is not evidence of incapacity. 1, 4
4. Expression of Choice
- Verify the resident can clearly communicate a stable preference. 1, 2
- Fluctuating choices may indicate impaired capacity, though some variation is normal. 1
Cognitive Screening Tools
Begin with the Montreal Cognitive Assessment (MoCA) to detect mild cognitive impairment, as recommended by the National Institute on Aging. 2
Add executive function testing because capacity requires cognitive flexibility and reasoning: 2
- Trail Making Test for psychomotor speed and sequencing 2
- Stroop Test for cognitive flexibility and response inhibition 2
Do not rely solely on MMSE scores or cognitive test results to determine capacity—these provide context but cannot substitute for functional assessment of the four abilities above. 2, 3
Risk-Proportionate Assessment
Tailor the rigor of your assessment to the stakes of the specific decision: 1, 2
- Low-risk decisions (e.g., daily activity preferences): Use an interactive, conversational approach with family support. 1, 2
- Moderate-risk decisions (e.g., routine medical procedures): Apply brief screening tools first, then formal assessment if uncertainty exists. 2
- High-risk decisions (e.g., major surgery, life-sustaining treatment, financial transactions): Conduct rigorous formal assessment with higher thresholds for demonstrating capacity. 2
Optimizing the Assessment Process
Schedule the evaluation during the resident's "good days" when cognitive function is relatively optimal, as capacity fluctuates in Alzheimer's disease. 1, 4
Implement supportive strategies before concluding incapacity: 1, 4
- Simplify language and avoid medical jargon 1
- Use visual aids or memory prompts 1, 4
- Provide corrective feedback and re-explain misunderstood information 1
- Allow extra time for processing 1
- Include familiar caregivers to facilitate communication 1
Reassess capacity over time, particularly if the resident's clinical condition changes or if the decision involves ongoing treatment. 1, 2
Critical Documentation Requirements
Record the following elements to create a legally defensible assessment: 2, 4
- Specific examples of the resident's statements demonstrating understanding (or lack thereof) 2
- The clinical reasoning that led to your capacity determination 2
- Which specific decisions the resident can or cannot make—avoid global statements like "patient lacks capacity" 2
- All supportive measures attempted before concluding incapacity 4
- Evidence that the assessment was proportionate to the decision's risk level 1, 2
Common Pitfalls to Avoid
Do not assume incapacity based on: 1, 2, 4
- The Alzheimer's diagnosis alone 1
- Advanced age (87 years) 2
- Depression or other comorbidities without functional assessment 1
- An "eccentric" or disagreeable choice 1, 4
Avoid vague documentation such as "patient confused" without concrete examples of how confusion impairs the specific decision at hand. 2
Do not perform a single global capacity assessment—capacity varies by decision complexity, so a resident may lack capacity for complex financial decisions yet retain capacity for simpler healthcare choices. 1, 2
When Capacity Is Impaired
If the resident lacks capacity despite supportive measures, identify the appropriate surrogate decision-maker: 2, 4
- Review any advance directives or durable power of attorney documents 2, 4
- If no designated agent exists, follow your state's default surrogate hierarchy (typically: spouse, adult children, parents, siblings) 1, 4
- As a last resort, petition for court-appointed guardianship 4
Instruct surrogates to respect the resident's known will and preferences expressed before capacity was lost, consulting advance planning documents and family members who know the resident's values. 1
When prior wishes are unknown, surrogates should make decisions based on the resident's beliefs, values, and best interests. 1
Continue to involve the resident in decision-making to the extent possible, seeking their assent and respecting any objections even when a surrogate has authority. 1
Special Considerations for This Resident
The combination of Alzheimer's disease and depression warrants particular attention, as depression can independently impair decision-making and may be treatable. 1
Multiple comorbidities (cardiac disease, cerebrovascular disease, spinal stenosis) increase the likelihood of mixed etiology cognitive impairment, which may respond partially to optimization of underlying conditions. 1
Advance care planning becomes urgent given the progressive nature of Alzheimer's disease—if the resident currently retains capacity for simpler decisions, prioritize appointing a durable power of attorney before further decline. 1, 4