What are the characteristics of MODY (Maturity-Onset Diabetes of the Young) types 4, 5, and 6?

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Last updated: February 18, 2025View editorial policy

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From the Guidelines

MODY (Maturity-Onset Diabetes of the Young) 4,5, and 6 are rare forms of monogenic diabetes, each resulting from distinct genetic mutations.

Characteristics of MODY 4,5, and 6

  • MODY 4 is caused by a mutation in the IPF1 gene 1
  • MODY 5 is associated with a mutation in the HNF1B gene 1
  • MODY 6 is caused by a mutation in the NEUROD1 gene 1

Treatment

Treatment for these forms of MODY typically involves lifestyle modifications, and in some cases, medication such as sulfonylureas, with a typical starting dose of 1.25-2.5mg of glipizide or 2.5-5mg of gliclazide, taken orally once or twice daily, with dose adjustments as needed to achieve optimal glycemic control 1.

Key Points

  • A diagnosis of MODY should be considered in individuals who have atypical diabetes and multiple family members with diabetes not characteristic of type 1 or type 2 diabetes 1
  • Genetic counseling is recommended to ensure that affected individuals understand the patterns of inheritance and the importance of a correct diagnosis and to address comprehensive cardiovascular risk 1

From the Research

Characteristics of MODY Types 4,5, and 6

  • MODY type 5 is associated with pancreatic agenesis, renal abnormalities, genital tract malformations, and liver dysfunction due to mutations in the HNF1B gene 2
  • MODY type 6 is a more severe subtype that requires an individualized treatment approach to maintain a patient's quality of life and prevent complications 3
  • The characteristics of MODY type 4 are not explicitly described in the provided studies, but it is mentioned that MODY has 14 subtypes with differences in prevalence and complications occurrence, which tailor the therapeutic approach 3
  • MODY subtypes differ based on the gene involved, gene penetrance, and expressivity, leading to varying clinical presentations and treatment requirements 3

Clinical Presentation and Diagnosis

  • MODY can be missed due to its broad clinical presentation, and heightened vigilance and a low threshold for genetic testing are required in patients with a high likelihood of having MODY 4
  • A precise molecular diagnosis is essential for optimal treatment of patients and allows early diagnosis for their asymptomatic family members 2
  • Genetic testing can help identify patients who are most likely to benefit from molecular genetic testing and guide treatment decisions 5

Treatment and Management

  • Sulfonylureas are effective in patients with certain MODY subtypes, such as MODY 1 and 3, by acting on adenosine triphosphate (ATP)-sensitive potassium channels 2
  • Insulin therapy may be required later in life for patients with MODY, particularly those with more severe subtypes 2, 3
  • An individualized treatment approach is necessary to maintain a patient's quality of life and prevent complications in MODY patients 3

References

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

Research

Maturity-onset diabetes of the young (MODY): an update.

Journal of pediatric endocrinology & metabolism : JPEM, 2015

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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