What are the characteristics of Ocular Pemphigus vulgaris (Pemphigus vulgaris affecting the eyes)?

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From the Guidelines

Ocular Pemphigus vulgaris is a rare autoimmune blistering disease that can affect the eyes, causing significant ocular surface inflammation and scarring, and its characteristics include chronic progression, subepithelial fibrosis, and potential for severe vision loss if left untreated 1.

Characteristics of Ocular Pemphigus Vulgaris

The disease is characterized by:

  • Chronic progression with frequent remissions and exacerbations of disease activity
  • Subepithelial fibrosis and keratinization of the conjunctiva
  • Conjunctival scarring, symblepharon, entropion, trichiasis, and corneal ulcers or perforation
  • Potential for severe vision loss if left untreated

Clinical Signs and Associated Factors

Clinical signs of Ocular Pemphigus vulgaris include:

  • Bilateral, often asymmetric, bulbar conjunctival injection, papillary conjunctivitis, and conjunctival subepithelial fibrosis
  • Keratinization, conjunctival scarring, and progressive conjunctival shrinkage
  • Associated factors include unknown genetic predisposition, more common in women, and onset generally over age 60

Natural History and Potential Sequelae

The natural history of Ocular Pemphigus vulgaris is characterized by:

  • Onset with goblet cell loss and mucin deficiency
  • Progressive chronic course, sometimes with remissions and exacerbations
  • Potential sequelae include conjunctival scarring and shrinkage, ankyloblepharon, symblepharon, trichiasis, corneal scarring, neovascularization, ulceration, and perforation

Treatment and Management

Treatment of Ocular Pemphigus vulgaris typically involves a combination of systemic and topical therapies, including:

  • First-line systemic treatment with oral prednisone and steroid-sparing immunosuppressants such as azathioprine, mycophenolate mofetil, or rituximab
  • Topical management with preservative-free artificial tears, topical corticosteroids, and antibiotic ointments
  • Regular monitoring by both an ophthalmologist and dermatologist, with eye exams every 1-3 months during active disease 1.

From the Research

Characteristics of Ocular Pemphigus Vulgaris

  • Ocular involvement in Pemphigus Vulgaris (PV) is rare, with the most common ophthalmologic involvement being conjunctivitis 2, 3
  • Severe conjunctivitis may be the dominating clinical manifestation in ocular pemphigus vulgaris, implying a need for distinct severity criteria and therapeutic standards 2
  • Corneal involvement is very rare, but can occur, leading to complications such as corneal ulceration and perforation 3
  • Ocular cicatrization, corneal vascularization, and photophobia are also possible symptoms of ocular pemphigus vulgaris 2, 3

Treatment of Ocular Pemphigus Vulgaris

  • Treatment of ocular pemphigus vulgaris typically involves a combination of systemic corticosteroids and immunosuppressive agents, such as cyclophosphamide or azathioprine 2, 3, 4, 5, 6
  • The use of prednisone and cyclophosphamide has been shown to be effective in achieving clinical remission in patients with pemphigus vulgaris, including those with ocular involvement 2, 5
  • Other treatment options, such as rituximab, may also be considered in severe or refractory cases 4

References

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

Research

[Severe eye involvement in pemphigus vulgaris].

Der Ophthalmologe : Zeitschrift der Deutschen Ophthalmologischen Gesellschaft, 1995

Research

[Pemphigus vulgaris. Therapy with cyclophosphamide].

Der Hautarzt; Zeitschrift fur Dermatologie, Venerologie, und verwandte Gebiete, 2013

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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