What is the workup for a patient with hypercortisolism (elevated cortisol level)?

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Workup for Raised Cortisol Level

The 1 mg dexamethasone suppression test (DST) is the preferred initial screening test for hypercortisolism, with cortisol measured at 8 AM after taking 1 mg dexamethasone at 11 PM the night before. 1

Initial Screening Tests

The diagnostic workup should begin with biochemical confirmation using one or more of the following tests:

  • 1 mg overnight DST: Take 1 mg dexamethasone at 11 PM, measure serum cortisol at 8 AM. Cortisol <50 nmol/L excludes hypercortisolism, 51-138 nmol/L suggests possible autonomous cortisol secretion, and >138 nmol/L indicates cortisol hypersecretion. 1

  • 24-hour urinary free cortisol (UFC): Collect at least 2-3 samples to account for variability. UFC is always markedly elevated in clinically apparent Cushing's syndrome and is independent of cortisol-binding globulin changes. 1, 2

  • Late-night salivary cortisol (LNSC): Multiple measurements can be easier for patients to complete and are useful when circadian rhythm disruption is present. 1, 3

Important caveat: No single test is perfect, so multiple tests are recommended to confirm the diagnosis. 3

Determining the Etiology

Once hypercortisolism is confirmed, measure plasma ACTH levels to differentiate between ACTH-dependent and ACTH-independent causes:

ACTH-Independent (Low/Undetectable ACTH <5 ng/L)

  • Indicates primary adrenal source 3, 4
  • Order adrenal CT or MRI to identify adenoma, carcinoma, or bilateral hyperplasia 3, 4
  • MRI correctly diagnoses adenomas in 5 of 6 cases and can distinguish carcinoma 4
  • Check DHEAS and testosterone if adrenocortical carcinoma or virilization is suspected 1

ACTH-Dependent (ACTH >5 ng/L)

  • Suggests pituitary (Cushing's disease) or ectopic ACTH source 3, 5
  • Order pituitary MRI with contrast to look for adenoma 3
  • If MRI is negative or equivocal, bilateral inferior petrosal sinus sampling (BIPSS) is the gold standard to confirm pituitary source. A central-to-peripheral ACTH gradient ≥2 before or ≥3 after CRH stimulation confirms Cushing's disease. 3
  • CRH stimulation test may help differentiate pituitary from ectopic sources 3

Clinical Assessment

Look for specific clinical features that support the diagnosis:

History findings: Weight gain, central obesity, easy bruising, severe hypertension, diabetes, proximal muscle weakness, fatigue, depression, sleep disturbances, menstrual irregularities, virilization (females), or fragility fractures 1

Physical examination findings: Hypertension, central obesity, supraclavicular fat accumulation, dorsocervical fat pad, facial plethora, thinned skin, purple striae >1 cm wide, acne, ecchymoses, hirsutism, proximal muscle weakness or wasting 1

Critical Pitfalls to Avoid

  • Always exclude exogenous glucocorticoid use first before proceeding with biochemical testing 3

  • Measure dexamethasone levels during DST to rule out abnormal metabolism from CYP3A4 inducers (phenobarbital, carbamazepine, St. John's wort) or inhibitors (fluoxetine, cimetidine, diltiazem) 1

  • Consider pseudo-Cushing's states: Psychiatric disorders, alcohol use disorder, obesity, and polycystic ovary syndrome can cause mild hypercortisolism with abnormal screening tests but UFC is typically <3-fold normal 1

  • Account for increased cortisol-binding globulin: Oral estrogens, pregnancy, and chronic active hepatitis increase total cortisol levels, causing false-positive DST results 1

  • Avoid UFC in renal impairment: Use LNSC instead when creatinine clearance <60 mL/min or polyuria >5 L/24h 1

  • Don't rely on imaging alone: Biochemical confirmation and ACTH determination must precede imaging to avoid misdiagnosing incidental findings 3

  • Consider cyclic Cushing's syndrome: Inconsistent results may require periodic re-evaluation 3

References

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

Guideline

Evaluation and Diagnosis of Cushing's Syndrome

Praxis Medical Insights: Practical Summaries of Clinical Guidelines, 2025

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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