Is severe eye pain a presenting symptom in patients with Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOGAD)?

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Severe Eye Pain in MOGAD

Yes, severe eye pain is a characteristic presenting symptom in MOGAD, particularly during acute optic neuritis episodes, and glucocorticoid treatment provides significant pain relief. 1

Pain Characteristics in MOGAD Optic Neuritis

Retrobulbar pain is a common feature of MOG-antibody-associated optic neuritis, often accompanying the visual symptoms at presentation. 2 The pain typically:

  • Occurs with eye movement (retrobulbar pain pattern) 2
  • Can be severe enough to be a prominent presenting complaint alongside visual loss 3, 1
  • Responds dramatically to intravenous methylprednisolone pulse therapy, with pain alleviation or significant relief occurring rapidly after glucocorticoid administration 1

Clinical Context of Pain Presentation

The eye pain in MOGAD occurs in the setting of:

  • Severe visual deficit or blindness during acute episodes, often bilateral 4, 5
  • Prominent papilledema, papillitis, or optic disc swelling on fundoscopy (76.2% of affected eyes show optic disc edema) 4, 1
  • Perioptic gadolinium enhancement on MRI during acute optic neuritis 4
  • Longitudinally extensive optic nerve lesions (74.6% show long-segment disease on MRI) 1

Distinguishing Features from Other Causes

MOGAD-associated optic neuritis can initially mimic pseudotumor cerebri when presenting with bilateral disc swelling and pain in the early stages, potentially delaying appropriate treatment. 6 Key distinguishing features include:

  • Rapid onset of severe visual loss (58.7% present with severe visual loss) 1
  • Bilateral simultaneous involvement is common 1
  • Optic perineuritis occurs in 47.6% of cases 1
  • Red color desaturation is a typical finding 2

Critical Treatment Implications

Timely recognition and treatment of the pain syndrome is essential because:

  • Delayed immunosuppressive treatment may cause irreversible optic nerve damage 2
  • High-dose intravenous methylprednisolone is first-line therapy and provides rapid pain relief 7, 8, 1
  • Slow steroid taper is mandatory due to high risk of flare-ups after rapid cessation 7, 8
  • Plasma exchange or immunoadsorption should be initiated early if steroids fail 7, 8

Common Pitfall

Do not misdiagnose early MOGAD optic neuritis as pseudotumor cerebri based solely on bilateral disc swelling and headache/eye pain, as this delays critical immunosuppressive therapy. 6 The presence of rapid visual loss, retrobulbar pain with eye movement, and red color desaturation should prompt immediate consideration of MOG-antibody testing with cell-based assays. 2, 6

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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