Is urinary retention a complication of Creutzfeldt-Jakob disease (CJD) in older adults?

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Last updated: February 3, 2026View editorial policy

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Urinary Retention in Creutzfeldt-Jakob Disease

Urinary retention can occur as a complication of Creutzfeldt-Jakob disease (CJD), though it is not a typical presenting feature and appears to reflect spinal cord pathology when present. 1, 2

Clinical Evidence for Urinary Retention in CJD

The association between CJD and urinary retention is documented in case reports, though the overall incidence remains unclear:

  • Case reports demonstrate that urinary retention can develop in CJD patients, with urodynamic studies revealing detrusor overactivity and neurogenic sphincter electromyogram patterns 2
  • The urinary dysfunction in CJD likely reflects pathological lesions in both the prefrontal cortex/basal ganglia and the sacral spinal cord 2
  • When urinary retention occurs in CJD, it should be considered a feature of the disease after carefully excluding other etiologies 1

Pathophysiology and Clinical Presentation

The mechanism of urinary dysfunction in CJD is multifactorial:

  • Urodynamic findings in CJD patients show diverse patterns including detrusor overactivity during bladder filling and decreased bladder sensation 2
  • Neurogenic changes on sphincter EMG suggest involvement of sacral spinal cord pathology 2
  • Traditional teaching attributes urinary dysfunction in CJD to functional incontinence from immobility and loss of motivation, but objective urodynamic evidence demonstrates true neurogenic bladder dysfunction 2

Clinical Assessment Recommendations

When evaluating urinary symptoms in suspected or confirmed CJD patients:

  • Physicians should evaluate pelvic floor function in CJD patients, particularly by checking post-void residual volumes 1
  • Assessment of urinary retention through bladder scanner or in-and-out catheterization is appropriate when urinary symptoms develop 3
  • Measurement of urinary frequency, volume, and control should be performed, along with assessment for dysuria 3

Management Approach

If urinary retention develops in a CJD patient:

  • Clean intermittent catheterization (CIC) is the standard treatment for urinary retention 4
  • Foley catheters should be removed within 48 hours if used, to avoid increased risk of urinary tract infection 3
  • Silver alloy-coated urinary catheters should be used if catheterization is required 3

Important Clinical Caveats

  • The number of documented cases is small, so urinary retention should not be considered a common or early feature of CJD 1
  • Other causes of urinary retention must be carefully excluded before attributing it to CJD itself 1
  • Urinary dysfunction may present as either retention or incontinence, and the pattern can vary between patients 1, 2

References

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

Guideline

Botox Bladder Injections and Urinary Retention

Praxis Medical Insights: Practical Summaries of Clinical Guidelines, 2025

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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