Patient Education and Follow-Up Instructions for Post-Concussion Syndrome
Patients with post-concussion syndrome should follow a structured rehabilitation protocol that includes initial rest for 24-48 hours followed by a gradual return to activities that doesn't exacerbate symptoms, with close monitoring of symptom expression throughout recovery. 1, 2
Initial Management (First 24-48 Hours)
- Observe more restrictive physical and cognitive activity during the first several days after concussion 1
- Avoid activities that exacerbate symptoms 1
- Monitor for warning signs requiring immediate medical attention:
- Worsening headache
- Increased drowsiness
- Inability to recognize people or places
- Repeated vomiting
- Unusual behavior
- Seizures
- Weakness or numbness in arms/legs
Gradual Return to Activity (After Initial Rest Period)
Cognitive Activities
- Resume cognitive activities gradually without significantly exacerbating symptoms 1
- Start with short periods (15-30 minutes) of light cognitive activity
- Increase duration and intensity as tolerated
- Avoid activities requiring intense concentration until symptoms improve
- Limit screen time (computers, phones, TV, video games) as these may worsen symptoms 1
- Consider using sunglasses for photophobia 1
- Avoid loud music or use of headphones if phonophobia is present 1
Physical Activities
Follow this stepwise progression 1, 3:
- No activity, complete rest until asymptomatic
- Light aerobic exercise (walking, stationary cycling)
- Sport-specific or activity-specific training
- Non-contact training drills
- Full contact training (after medical clearance)
- Return to full activity/competition
Important: Progress to next level only if asymptomatic at current level. If symptoms recur, return to previous asymptomatic level and try again after 24 hours 1, 3
Return to School/Work Instructions
- Customize return-to-school/work protocols based on symptom severity 1
- Consider temporary accommodations:
- Shortened days
- Reduced workload
- Extra time for assignments/tests
- Breaks as needed during the day
- Avoidance of noisy environments (cafeterias, assemblies)
- Monitor symptoms and academic/work performance collaboratively with school/workplace 1
- Adjust accommodations as symptoms improve 1
Specific Symptom Management
Headaches
- Over-the-counter pain relievers as directed by healthcare provider
- Identify and avoid headache triggers
- Consider referral for persistent headaches
Sleep Disturbances
- Maintain regular sleep schedule
- Practice good sleep hygiene
- Avoid caffeine and electronic screens before bedtime
Balance/Dizziness Issues
- Consider vestibular rehabilitation for persistent balance problems 1, 3
- Avoid activities that might lead to falls or further injury 3
Visual Symptoms
- Oculomotor vision treatment for persistent visual symptoms 1, 3
- This can improve visual symptoms and reduce headache and fatigue 3
Emotional/Psychological Symptoms
- Psychological treatment has shown positive effects on overall burden of post-concussion symptoms 1, 3
- Consider referral if experiencing persistent anxiety, depression, or irritability
Warning Signs for Follow-Up
Seek immediate medical attention if experiencing:
- Worsening symptoms
- New neurological deficits
- Significant mood changes
- Inability to return to previous level of functioning despite following recommendations
Follow-Up Appointments
- Schedule follow-up appointments as directed by your healthcare provider
- Bring a symptom diary to track progress
- Report any new or worsening symptoms
Important Cautions
- Avoid driving until cleared by healthcare provider, as reaction times may be slowed 1
- Avoid alcohol and recreational drugs during recovery
- Do not take sleep aids without consulting your healthcare provider
- Never return to high-risk activities while still symptomatic 1
Long-Term Considerations
- Most post-concussion symptoms resolve within 3-6 months 4
- For persistent symptoms beyond 4 weeks, consider referral for specialized evaluation 1
- Interdisciplinary coordinated rehabilitation may be beneficial for persistent symptoms 1, 3
- Prolonged rest beyond the initial 24-48 hours can be detrimental and delay recovery 2, 5
Remember that each concussion is unique, and recovery times vary. The key is to balance rest with gradual return to activity without exacerbating symptoms.