What are the main types of cystic lung disease in males?

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Last updated: March 12, 2025View editorial policy

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From the Guidelines

The main types of cystic lung disease in men include lymphangioleiomyomatosis (LAM), pulmonary Langerhans cell histiocytosis (PLCH), lymphoid interstitial pneumonia (LIP), Birt-Hogg-Dubé syndrome, and pneumatoceles.

Key Characteristics of Each Condition

  • LAM, though more common in women, can occasionally affect men and involves smooth muscle cell proliferation causing cystic destruction, as noted in the European Respiratory Society guidelines 1.
  • PLCH is strongly associated with smoking and features Langerhans cell infiltration forming stellate nodules that evolve into cysts, as described in the American Thoracic Society statement 1.
  • LIP presents with diffuse, thin-walled cysts due to lymphocytic infiltration and is often associated with autoimmune conditions.
  • Birt-Hogg-Dubé syndrome is a genetic disorder caused by mutations in the FLCN gene, characterized by multiple thin-walled cysts predominantly in the lower lungs, along with skin lesions and kidney tumors.
  • Pneumatoceles are thin-walled, air-filled spaces that typically develop after infections like Pneumocystis jirovecii pneumonia, particularly in immunocompromised patients.

Diagnostic Approach

Diagnosis typically requires chest imaging (CT scans), pulmonary function tests, and sometimes lung biopsy to distinguish between these conditions, with the European Respiratory Society guidelines emphasizing the importance of excluding alternative causes of cystic lung disease 1.

Other Considerations

Other considerations include emphysema, which creates air spaces through alveolar wall destruction, and cystic bronchiectasis, where airways become abnormally dilated, highlighting the need for a comprehensive diagnostic work-up to determine the underlying cause of cystic lung disease in men.

From the Research

Types of Cystic Lung Disease

The main types of cystic lung disease include:

  • Lymphangioleiomyomatosis (LAM) 2, 3, 4, 5, 6
  • Pulmonary Langerhans cell histiocytosis (PLCH) 2, 3, 4, 5, 6
  • Birt-Hogg-Dubé syndrome (BHD) 3, 4, 5, 6
  • Lymphocytic interstitial pneumonia (LIP) 3, 5, 6
  • Amyloidosis 3, 5, 6

Disease Characteristics

These diseases are characterized by the presence of diffuse thin-walled cystic changes in the lung 3, and can present with similar radiological cystic patterns, age of onset, and possibility of extrapulmonary involvement 2. High-resolution computed tomography (HRCT) is the imaging technique of choice for the evaluation and diagnosis of cystic lung disease 5.

Diagnosis and Management

Diagnosis can be established based on HRCT findings, clinical features, and extrapulmonary manifestations 4, 5, 6. Treatment options are available, including mechanistic target of rapamycin (mTOR) inhibitors such as sirolimus for LAM 3.

References

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

Research

New insights in lymphangioleiomyomatosis and pulmonary Langerhans cell histiocytosis.

European respiratory review : an official journal of the European Respiratory Society, 2017

Research

Lymphangioleiomyomatosis: differential diagnosis and optimal management.

Therapeutics and clinical risk management, 2014

Research

Multiple cystic lung disease.

European respiratory review : an official journal of the European Respiratory Society, 2015

Research

Cystic lung disease.

Radiologia, 2022

Research

Diagnosis and treatment of cystic lung disease.

The Korean journal of internal medicine, 2017

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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