What biological therapies are available for Periodic Fever, Aphthous Stomatitis, Pharyngitis, and Adenitis (PFAPA) in pediatric patients?

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Last updated: April 11, 2025View editorial policy

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From the Guidelines

Biological therapy for PFAPA syndrome in pediatric patients includes IL-1 inhibitors such as anakinra, which can be administered at 1-2 mg/kg/day subcutaneously during flares or as daily prophylaxis, and canakinumab, typically given as 2-4 mg/kg subcutaneously every 4-8 weeks, as supported by recent studies 1. The choice of biological therapy for PFAPA syndrome depends on the severity of the disease and the patient's response to conventional therapies.

  • IL-1 inhibitors, such as anakinra and canakinumab, have been shown to be effective in reducing fever and other inflammatory symptoms in patients with PFAPA syndrome, as reported in recent studies 1.
  • Anakinra can be used at a dose of 1-2 mg/kg/day subcutaneously during flares or as daily prophylaxis, while canakinumab is typically given as 2-4 mg/kg subcutaneously every 4-8 weeks.
  • These biologics work by blocking interleukin-1, a key inflammatory cytokine implicated in PFAPA pathogenesis, thereby reducing fever and other inflammatory symptoms.
  • They are generally considered second or third-line treatments, reserved for cases that are refractory to conventional therapies like corticosteroids (prednisone or prednisolone), colchicine, or tonsillectomy.
  • While these biologics can be highly effective in controlling symptoms and preventing flares, they are expensive and may require insurance approval.
  • Side effects include injection site reactions and increased risk of infections.
  • Regular monitoring for adverse effects is necessary, and patients should be up-to-date on vaccinations before starting therapy.
  • Treatment duration varies based on clinical response, with some patients requiring long-term therapy while others may achieve remission after a period of treatment, as supported by recent studies 1.

From the Research

Biological Therapy for PFAPA in Pediatric Age Group

  • The available biological therapies for PFAPA in pediatric age group patients include:
    • Anakinra: an interleukin (IL) receptor antagonist that works by blocking the biological activity of IL-1 2, 3
    • Canakinumab: an IL-1β blocker that has been effective in preventing febrile attacks in some patients with PFAPA 2
    • Rilonacept: an IL-1 receptor antagonist that has been used in the treatment of cryopyrin-associated periodic syndromes, but its effectiveness in PFAPA is not well established 2

Mechanism of Action

  • These biological therapies work by targeting the interleukin-1 (IL-1) pathway, which is involved in the pathogenesis of PFAPA 2, 3
  • IL-1 production is induced in response to inflammatory stimuli and mediates various physiological mechanisms, including inflammation and immunological reactions 3

Efficacy and Safety

  • Anakinra has been reported to abort PFAPA attacks in children, while canakinumab has been effective in preventing febrile attacks in some patients 2
  • The efficacy and safety of these biological therapies in pediatric patients with PFAPA need to be further evaluated in larger studies 2, 3

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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