Hospice Recertification Documentation for Senile Degeneration of the Brain
For hospice recertification in a patient with senile degeneration of the brain, document progressive functional decline with complete dependence in activities of daily living, evidence of advanced dementia complications (such as severe dysphagia, recurrent infections, or becoming bedbound), and alignment of care goals with comfort-focused rather than life-prolonging interventions. 1, 2
Essential Documentation Components
Functional Status Assessment
- Document complete functional dependence: inability to dress, bathe, toilet, transfer, or feed without complete assistance 2
- Record specific functional losses: progressive loss of ambulation or becoming bedbound, decreased consciousness or significant changes in level of awareness 1
- Use validated assessment tools: The Functional Assessment Staging Tool (FAST) is widely used to determine preliminary eligibility for hospice care in patients with severe dementia 3
Disease Progression Indicators
- Document advanced vascular cognitive impairment (VCI) with cerebrovascular disease representing a progressive, life-limiting condition 1
- Record evidence of decline: inability to perform activities of daily living independently, severe dysphagia or inability to maintain adequate nutrition/hydration 1
- Note medical complications: recurrent respiratory or urinary infections, pressure ulcers, hypernatremia, or other complications indicating advanced disease 1, 4
Cognitive and Behavioral Assessment
- Document cognitive impairment in at least two domains: memory, executive function, visuospatial abilities, language, or personality/behavior changes 3, 5
- Use informant-based tools: AD8, IQCODE, or NPI-Q to obtain surrogate reports regarding cognitive, functional, and behavioral changes 2
- Record behavioral symptoms: agitation, neuropsychiatric symptoms, or behavioral disturbances that impact quality of life 1, 2
Symptom Management Documentation
Current Symptom Burden
- Document ongoing assessment and management of: pain (using behavioral pain scales when verbal communication is impaired), respiratory distress and secretions, delirium, incontinence, nausea, vomiting, constipation, skin and wound care 1, 2
- Record undiagnosed pain assessment: behavioral changes often manifest as pain in patients who cannot verbally communicate discomfort 2
- Note nutritional approach: comfort feeding by hand rather than tube feeding 2
Medication Management
- Reassess dementia medications: document evaluation of memantine and acetylcholinesterase inhibitors for continued benefit versus side effects in context of advanced disease 2
- Focus on comfort-directed pharmacotherapy: avoid unnecessary medications and prioritize symptom management 2
Advance Care Planning Documentation
Goals of Care
- Record advance care planning discussions with surrogate decision-maker about preferences for end-of-life care, including decisions to forgo hospitalization, tube feeding, or aggressive interventions 1, 2
- Document patient's previously expressed values and wishes and family understanding of the progressive nature of the disease 1
- Note code status: document current code status and any changes toward do not attempt resuscitation 4
Prognosis and Disease Understanding
- Document that surrogate decision-maker has been provided comprehensive information about dementia progression, expected complications, and available care options 2
- Record discussions about disease progression and what to expect as death approaches 1
Psychosocial and Caregiver Support
Family Support Documentation
- Document provision of education on dementia progression, end-of-life care, symptom management strategies, and what to expect as death approaches 2
- Record attention to psychological, social, and spiritual suffering of both the patient and family/caregivers 1
- Note caregiver resources provided: respite services, support groups, help hotlines, and bereavement support resources 1, 2
Clinical Rationale for Continued Hospice Care
Prognostic Indicators
- Dementia constitutes the fifth leading cause of death in patients >65 years of age, with complications leading to great morbidity and mortality 3
- Advanced dementia is recognized as a terminal condition requiring palliative care, with median survival times of 5-7 months when enrollment criteria based on advanced dementia characteristics and medical complications are met 6, 7, 8
- Patients with advanced dementia suffer a range of burdensome symptoms including pain, eating problems, breathlessness, neuropsychiatric symptoms, and complications such as respiratory or urinary infections 6
Appropriateness of Hospice Care
- Palliative care interventions are appropriate for the predictable complications of dementia and can effectively reduce suffering of patients and families 8
- Care of patients with end-stage dementia is clinically and conceptually consistent with hospice and palliative care principles, focusing on comfort and quality of life 1, 8