What is Hemolytic Uremic Syndrome (HUS)?

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From the Guidelines

Hemolytic uremic syndrome (HUS) is a serious condition that requires prompt and supportive care, with a focus on fluid and electrolyte management, blood pressure control, and often dialysis for acute kidney injury, as outlined in the 2017 Infectious Diseases Society of America clinical practice guidelines 1.

Key Components of Care

  • Fluid and electrolyte management to prevent dehydration and electrolyte imbalances
  • Blood pressure control to prevent further kidney damage
  • Dialysis for acute kidney injury to remove waste products and excess fluids
  • Platelet transfusions should generally be avoided unless there is life-threatening bleeding, as they may worsen the microthrombi formation
  • Plasma exchange therapy may be beneficial in atypical HUS cases

Specific Treatment Considerations

  • For complement-mediated atypical HUS, eculizumab (a complement inhibitor) is the recommended treatment, typically administered as induction therapy at 900 mg weekly for 4 weeks, followed by maintenance therapy of 1200 mg every 2 weeks
  • Patients should receive meningococcal vaccination before starting eculizumab due to increased infection risk
  • For typical HUS associated with Shiga toxin-producing E. coli, antibiotics are generally avoided as they may increase toxin release

Monitoring and Prevention

  • Frequent monitoring of hemoglobin and platelet counts, electrolytes, and blood urea nitrogen and creatinine is recommended to detect hematologic and renal function abnormalities that are early manifestations of HUS 1
  • Examining a peripheral blood smear for the presence of red blood cell fragmentation is necessary when HUS is suspected
  • Early identification of STEC infections is important to reduce the risk of complications and the risk of person-to-person transmission 1

From the Research

Definition and Characteristics of HUS

  • Hemolytic uremic syndrome (HUS) is a disease characterized by hemolysis, thrombocytopenia, and acute kidney injury, although other organs may be involved 2.
  • HUS is classically associated with enterocolitis from Shiga toxin-producing Escherichia coli, but it can also be associated with other infections, genetic dysregulation of the alternative complement pathway or coagulation cascade, and rare hereditary disorders 3.

Types of HUS

  • Most cases of HUS are due to infection with Shiga toxin-producing Escherichia coli (STEC) 2.
  • Atypical HUS (aHUS) accounts for approximately 10% of HUS cases and has a diverse etiology, including inherited or acquired abnormalities that lead to a failure to control complement activation 2.
  • aHUS can occur in various situations, such as related to pregnancy or kidney transplantation, and may involve excessive complement activation 2.

Treatment and Management of HUS

  • Early identification and initiation of best supportive care, with microbiological input to identify the pathogen, result in a favorable outcome in most patients with STEC-HUS 2.
  • Plasma therapies can reverse defective complement control, and targeting complement activation has led to improved outcomes in patients with atypical forms of HUS 2, 4.
  • Therapeutic plasma exchange (TPE) and eculizumab have been used in the treatment of STEC-HUS, but the short-term benefit of eculizumab compared to TPE alone is not well established 5.
  • Development of clinical prediction scores and rapid diagnostic tests for HUS based on mechanistic knowledge are needed to facilitate early diagnosis and assign timely specific treatments to patients with HUS variants 6.

References

Guideline

Guideline Directed Topic Overview

Dr.Oracle Medical Advisory Board & Editors, 2025

Research

Management of hemolytic uremic syndrome.

F1000prime reports, 2014

Research

Hemolytic Uremic Syndrome.

Pediatric clinics of North America, 2019

Research

An effective treatment of atypical hemolytic uremic syndrome with plasma exchange and eculizumab: A case report.

Transfusion and apheresis science : official journal of the World Apheresis Association : official journal of the European Society for Haemapheresis, 2015

Research

Best supportive care and therapeutic plasma exchange with or without eculizumab in Shiga-toxin-producing E. coli O104:H4 induced haemolytic-uraemic syndrome: an analysis of the German STEC-HUS registry.

Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association, 2012

Professional Medical Disclaimer

This information is intended for healthcare professionals. Any medical decision-making should rely on clinical judgment and independently verified information. The content provided herein does not replace professional discretion and should be considered supplementary to established clinical guidelines. Healthcare providers should verify all information against primary literature and current practice standards before application in patient care. Dr.Oracle assumes no liability for clinical decisions based on this content.

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